Webinar Education Series – Pediatrics Webinar
In the recording of this webinar, Dr. Ruth Casey and Dr. Christina Pamporaki offer valuable information on pediatric pheo/para, while also discussing the recent release of the consensus statement. Question Timestamps: 48:31 - Q1: How do you manage incidentally found tumors on an asymptomatic SDHB patient if the tumor is not easily resectable? 50:58 - Q2: I recall seeing a new drug that is potentially available to treat these tumors. (In reference to Belzutifan) 52:13 - Q3: In patients with MEN2 who are found to have an adrenal tumor suspected of being clinically silent pheochromocytoma, and a normal biochemistry, is adrenal blockage necessary? 55:26 - Q4: Can you please clarify how knowing the somatic variant driving a PPGL in a germline negative patient impact management? 57:58 - Q5: I as a parent didn't have my tumor tested and was only tested via blood. Would I want to be tested again in case there was another variant? Or is this something that I should do every few years? 1:00:07 - Q6: How do we address the psychological impact of a diagnosis such as a pheochromocytoma or a paraganglioma in children and their families?
In the recording of this webinar, Dr. Ruth Casey and Dr. Christina Pamporaki offer valuable information on pediatric pheo/para, while also discussing the recent release of the consensus statement. Question Timestamps: 48:31 - Q1: How do you manage incidentally found tumors on an asymptomatic SDHB patient if the tumor is not easily resectable? 50:58 - Q2: I recall seeing a new drug that is potentially available to treat these tumors. (In reference to Belzutifan) 52:13 - Q3: In patients with MEN2 who are found to have an adrenal tumor suspected of being clinically silent pheochromocytoma, and a normal biochemistry, is adrenal blockage necessary? 55:26 - Q4: Can you please clarify how knowing the somatic variant driving a PPGL in a germline negative patient impact management? 57:58 - Q5: I as a parent didn't have my tumor tested and was only tested via blood. Would I want to be tested again in case there was another variant? Or is this something that I should do every few years? 1:00:07 - Q6: How do we address the psychological impact of a diagnosis such as a pheochromocytoma or a paraganglioma in children and their families?